The Marinellos

Thursday, January 28, 2010

Seth has...

ROLLED OVER!

I woke up to Seth crying this morning at 5:45am and not too thrilled that he was up but I got out of bed and headed into his room. He was on his back! (He sleeps on his belly and I put him to bed last night on his belly so I know he did it himself) It was so excited and happy that he finally did it on his own without help. I woke Mike up when I went back into the room to let him know.

I do not know how to express this to make sense but in a cmv world when you are told that your baby might not walk, talk, sit, stand, have brain damage, seizures, vision issues and many more things it is very hard to get past that and live each day like he's gonna be okay. It's very hard for me to not feel guilty for what has happened to him, to not blame myself for the fact that he is 4 months behind and not doing the things that a 7 month old should be doing. Its hard to think that he might not see everything that I can see because I got a cold...a stupid cold did this and I was the one that got the cold. My mind goes places that it shouldn't but it does and it is a hard thing to get out of your head. I can have someone tell me every single day, "its not your fault, you did not do this to Seth, you just got a cold." and still my thoughts can go right back to the fact that I am the reason he is so far behind and if I would have never gotten sick, or washed my hands more, or didn't let myself get so worn down than I would have never gotten the cold, but again that was not Gods plan. As you can see I can make myself sick with all of the thoughts that I have. Anyways, my point is that when I walked in that room this morning and saw that he was on his back...I was not in a cmv world I was in HIS world, maybe for the first time, and he just did something that some doctors said that he might NEVER do. Yes he was behind 3-4 months in rolling over but he did it!

So now for some updates. Jan 8th Seth had his 6 month check up and is still a big boy. 19.7 pounds 75% and 28 1/2 inches 95% so he is still growing strong. He had an enlarged spleen at the time and they want me to get an ultrasound done to get it checked out so I have to schedule that still. Then that following Tuesday I took him back into the doc where he had another UTI again nothing new there it was bound to happen again. Then Thursday the 14th I took him back in for a horrible cough that he started getting Tuesday night. On the way to the doc he was coughing so hard that he was throwing up everywhere and all the time. I had to pull over 4 times to make sure that he was still breathing before I made it to the doctors. He ended up having RSV and got some medicine. The next day (Friday) we headed to Disney and he was just not feeling that great. He threw up many times on the way there from coughing. We can back home Monday and went back into the doctors Tuesday where they gave us a breathing machine and we had to do breathing treatments on him for about a week. Finally he is doing much better and I do not think I have heard him cough in two days which is really nice.

Yesterday we had our first official OT session which was really nice to finally get that started. Donny is his therapist and he is really wonderful with kids and you can tell he just really loves what he is doing. He spent a lot of time with Seth and just working with him on grasping toys once you put it near his hands. All in all it went well and we will start having it every week for an hour on Tuesdays.

Here a few pictures from the past month :)

6 months old


Playing in his bumbo





laying around


Christmas morning!


7 months old


Trying to feed him. He still does not like it.


Thursday, January 7, 2010

Seriously??

My life is a little overwhelming right now and family just does not help sometimes. I just wish that people didn't have to talk about other people. If you have something to say to me, just say it to me lets not act childish and talk behind my back...really? I have way too much stuff on my plate right now to deal with people that are acting like they are 12.

-My time is limited, extremely limited and if you can not understand that I do not have the time to just sit around and my parents house all day and hang out...that is not MY fault. I have done nothing wrong. Instead I have a house to take care of, a husband, two kids, doctor appointments up the wazoo, and specialists coming to the house once a week. When I do have a moment it is either spent with my family, friends or parents.
-Taking my time away from my daughter and her friends at HER birthday party is not a place to come and talk to me about something that in the end did not matter at THAT moment. That was so not the time or the place for that. I am so sorry that you think you are that important to come and talk to me about such sensitive issues at that moment.
- If you want to borrow something of mine just ask and I will most likely always let you borrow it...the problem comes in when YOU do not ask and I find out about, or someone just allowed you to use it thinking it was okay with me. There might have been a few things that I did not want anyone else to have because they are special to be but in the end whatever I did not want to keep to myself is able to be used if you just ASK!
-Just because I do not do the things that you like to do or the things that you want me to do with you does not mean that I do not like you. If anyone knows me at all they know that I do not like to go shopping for fun, take dance lessons, have spa days...I will get a pedicure but thats it. If you want me to go running, walking, play basketball, play soccer, hiking, or anything athletic I will do it but if that is something you do not like I will not get upset with you for it.
-Friendship can come naturally or it can be something you work on. If you want to be friends with me I can not be the one to do all of the work. You, as well need to put forth the effort. Don't say that I do not like you and I do not want to be your friend unless you have also put forth the effort to have a relationship with me.
- Any type of shower, bridal or baby shower the host is not the one who picks who is invited to the shower rather the person whom the shower is for. If I have thrown a baby or bridal shower and you were not invited again that is not MY fault. I have no control over who is invited I just do the invites and send them out. Im really sorry if you think I had anything to do with that and that you think you have to be invited to everything that I do. Thats not how it works.

If you have no idea what I am talking about in the post than Im sorry you had to read it cause I am just venting and it does not apply to you at all. :)

Wednesday, January 6, 2010

6 months old and CHRISTmas!

Seth was 6 months old on the 22nd, are you serious? Time has just gone by way too quickly and why is my little muffin growing up so fast? He is so cute and such a cuddle-bug. He is about to cut his bottom two teeth. We have his 6 month check-up on Friday so I will update then how he is doing. 

Friday will be our 5 year anniversary and Matt and Lisa asked to take the kiddos for us so that we could get away so we are going to stay somewhere which will be really nice to just check-out for a day and night. Thanks so much for taking out kids for the night, you guys are the best.

Christmas was so nice this year. On the 23rd we went over to the MacCallum's and exchanged gifts and Sydney and Seth had so much fun and we all got so many things. It was so nice to start a new family tradition with amazing friends that are practically family! On Christmas Eve my parents came over here and gave Sydney some gifts and staked her playground into the ground and she has so much fun on it. She loves going down the slide and really loves to swing. On Christmas Day Sydney was the first one up and when I heard her I came out and she was just sitting by the christmas tree in shock at all the gifts that were under it and wanted to open them all. So we all opened our gifts and stockings. Sydney got lots of fun things and also some much needed stuff. Tinker Bell toys, books, coloring books, clothes, shoes, balls, and just some random stocking stuffers. We then headed over to Mike's moms and we were there all day and had some breakfast, and opened gifts and then relaxed and watched some Christmas movies...Home Alone :) and Elf. Then we had a yummy dinner and headed home :)

Great Holidays and we can not forget the reason that we are all here. He was born on Christmas day and died so that I may live. That is the best Christmas gift that I could ever ask for. Thank you!

6 months, are you serious?

Seth is 6 months already!!! Holy Cow where does the time go? I will post some pictures when I find some time to go get the camera and upload them :) We had a great Christmas and Seth is about to cut his bottom teeth. He always has his hands in his mouth which is a good thing and he latched on a toy when I put it in his hand and put it in his mouth which is a huge thing, so that was really exciting.

The 29th we had a PT evaluation and he will need on-going PT. It will be once a week for an hour for at least a year. I am not sure when it will start exactly but she said in about 3 weeks, so most likely when we get back from Disneyland. The PT said that he was about 3 months behind which was extremely HARD. I can not describe to anyone, unless you have experienced the same thing, how hard that is to hear.

On January 2nd we had the OT come out and do an evaluation and Seth will also need OT on-going meaning once a week for an hour as well. Donnie (OT) is super nice and seems to really love helping kids and he has worked with one other CMV baby so that made me feel a little bit better. He said that Seth is around the 2-3 month stage so he is about 3-4 months behind and hearing that again was not fun. It was a flood of emotions and thoughts that I was not ready for. That day was really hard for me but I did my best to get through it!

Soon we will have a speech and feeding therapist coming out to evaluate Seth and they will let me know if it needs to be on-going like the other ones are. So to say the least my life got just a little bit more crazy but I will do anything for my little muffin and this is just the start!